|Event Title||Law Enforcement Charity Hockey Game|
|Event Start Date/Time||08-25-2018 3:00 PM|
|Event End Date/Time||08-25-2018 6:00 PM|
|Venue Name||Jersey Shore Arena|
|Venue Location||Street Address: 1215 Wyckoff Road
City: Wall Township
State: New Jersey
Zip Code: 07727
|Event Details||Law enforcement officers and the Newark Family Foundation are sponsoring a hockey game fundraiser to benefit Baby Nolan, who is diagnosed with KCNQ2 epileptic encephalopathy.
The charity game will be held from 3-6 p.m. on Saturday, Aug. 25, at Jersey Shore Arena, 1215 Wyckoff Road, Wall. Tickets can be purchased at the door and are $10 for adults, $5 for children and free for those age 5 and under.
Nolan was born this past February at Community Medical Center in Toms River, and within hours of his birth, he began experiencing seizures. He was immediately transferred to DuPont Children’s Hospital in Delaware, where he and his parents, Thomas and Kara (Ryan) Boulter, spent the next three and a half months. Nolan is their second child.
Nolan’s diagnosis is very unique, with approximately 500 known cases throughout the world, and only four known with his particular variant. While his prognosis is not clear, it is believed that Nolan will be severely disabled.
Nolan’s seizures have been very difficult to control. He’s on three seizure-control medicines and a ketogenic diet for his seizures, in addition to seven other medications that help Nolan sustain life. At six months of age he is showing severe developmental and motor skills delays. He will probably be non-verbal and unable to walk. Kara will likely never hear him say “Mama” or watch him run and play with his big brother, but she will never quit on him. Nolan is in occupational, physical, speech/feeding, and developmental therapies, as well as chiropractic care; and, his battles continue to mount. Nolan is followed by pediatric neurologists, orthopedic surgeons, gastroenterologists, neuro-ophthalmologist, endocrinologist, pulmonologist, hematologists, and a nutritionist.
Doctors have told Kara on two occasions in Nolan’s short six months of life that he should have died. She has said, “In an instant, my life changed and will never be the same. I became a law enforcement officer because I wanted to protect people and keep them from harm. Now, here I stand unable to protect my own baby and I cannot keep him safe from this terrible disorder. For the first time in my life, I feel helpless.”
Kara, who has served over 10 years as a Federal Law Enforcement Officer, has a passion for assisting people, so it feels different to be the one who needs help now.
To help this family face their challenges, law enforcement officers have come together and organized a charity hockey game event that will help raise funds to help manage Nolan’s long-term medical needs and raise awareness about little warriors like Nolan with KCNQ2.
Tickets will be available at the door or contact Eric Johnson at 973-997-1863 to pre-purchase them.
If you cannot attend the game, but still would like to make a donation, please visit the PayPal account email@example.com.
|Phone Number||(732) 691-6387|
Law Enforcement Charity Hockey Game
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- This event has passed.
August 2520183:00 pm - 6:00 pm
Jersey Shore Arena, 1215 Wyckoff Road, Wall Township, NJ, + Google Map